In Bolgatanga and Wa, all rooms were ready and furnished by the Regional Hospitals.
Counseling Units were set up and attached to Sickle Cell Clinics in the three Regional Hospitals.
Forty years later, in 2017, life expectancy in the US has grown with identification of patients with newborn screening programs, prophylactic penicillin from birth to age six, the advent of the pneumococcal vaccine, transcranial doppler ultrasound screening with transfusions to prevent stroke, chest syndrome recognition and prevention, comprehensive pediatric care and hydroxyurea. Jude Children’s Research Hospital in Memphis TN had leukemia and sickle cell disease. Jude doctor performed a bone marrow transplant using marrow donated from the patient’s brother.The patient was cured of both leukemia and sickle cell disease.By the early 1990s, the Cooperative Study of Sickle Cell Disease estimated a median life expectancy of those with sickle cell anemia, the most severe form of the disease, of 42 years of age for males and 48 years of age for females. https://gov/fdavoice/index.php/2017/09/making-advances-against-sickle-cell-disease/# L-glutamine oral powder https://gov/Drugs/Information On Drugs/Approved Drugs/ucm566097N Engl J Med 2017; 38-855 March 2, 2017 In 2005 Lanzkron et al confirmed these findings of a significant decrease in mortality for children with SCD, but mortality for adults increased during the same time period. query=featured_home Sickle Cell Disease Update form the ASH meeting in December 27, 2017 cell patients fight uphill battle for research, treatment — and compassion Jenny Gold — Kaiser Health News December 26, 2017 https:// Sickle Cell Disease Advocacy In Ghana: Experiences From An African Country.Mass media education and public events were also done, supported by the Ministries of Health and Education using publicity drive: Radio discussion programs, Talk Shows, Community/Town Hall Meetings and Information van community announcements.
TV and Billboard adverts, Banners, Flyers, Posters, Presentations using Projector and Screen and ‘T’- shirts were all used to intensify the advocacy.
This was solved by the use of vehicles from the Regional Hospital, Regional Health Directorate and Ministry of Education in regions. Another challenge that came up was the lack of staff for the project, since some of the trained personnel for the project had to discontinue work in the north.
This was also solved by using volunteers and coordinators from the Regional Hospitals and Regional Health Directorate who were given some form of training in each region before work started.
Education on SCD was given to students in almost all Health Training Institutions and Senior High Schools in the three regions.
Informal Education: The approach used was community based health education.
Sickle Cell News for January 2018– To join or leave the listserv visit Stopping the Sickle Cycle – Where are we?